Tuesday, August 24, 2010

What not to say

When we went through our loss, all we wanted was for everyone to know (so we didn't have to explain what happened) and for people to just let us be.

I understand how awkward it must be for bystanders who just don't know what to say.  But some people just don't think before they speak.  Here's some of the ill-phrased but well-intentioned responses we heard:

It just wasn't meant to be

This wasn't your time

You're young, you'll have more babies

I had a miscarriage and I understand how you feel

At the time, some of these made me downright angry.  How could they possibly know how I'm feeling?  I carried a baby for 27 weeks, I felt her move and watched my belly twitch with her kicks.  I was well past the three month "danger zone" and thought it was smooth sailing, until my bliss was ripped out from underneath me with the harsh reality of our situation.

I now know that people really didn't know what to say, and I'm sure I've even made similar thoughtless comments in the past.  Now I know that the only thing a person suffering a miscarriage wants to here is:

I'm sorry, and I'm here for you.

Helpful advice that you will hopefully never need to use!  Here's some other do's and don'ts from a miscarriage support centre in Aukland, New Zealand.

Black Swan Song

One of my favourite bands is Athlete, a small indie group from London. Around the time Olivia was born, I started listening to their new(ish) albums, The Getaway and Black Swan.

At the time their music really resonated with how I was feeling, completely broken and unable to see past each day. One song song in particular, called Black Swan Song, really spoke to me. I've been listening to it for months and over time the lyrics took on a new meaning for me. They went from mirroring my despair to becoming a source of hope and reminding me to appreciate my friends and family who helped me to survive the most difficult time of my life.  Going through something like that was an eye opener - you truly learn who the most important people in your life are during these moments (especially those who surface after years without any contact).

Here's a live clip of the song:




And here's the lyrics:

I waded through the darkest fields you'd imagine
Your pretty face sketched on the barrel of my gun
And i know you'll be the first to welcome me
When i climb into eternity
Oh,oh

The forest kept us warm
But it doesn't feel like home anymore
And i know there's bigger mountains where you are
And a better climate for my heart
Oh,oh

I've been racing the clock
And I've run out of steam
I am ready for my final symphony
Oh my body is weak
But my soul is still strong
I am ready to rest in your arms

Though many battles i have won
I lost too many friends i could count on
And i know they'll be the first to welcome me
When i parachute into eternity
Oh,oh

I've been racing the clock
And I've run out of steam
I am ready for my final symphony
Oh my body is weak
But my soul is still strong
I am ready to rest in your arms

And the rain beat down on the rooftops
But there was no sound,
There was no sound
And all my friends and family carried me
They carried me home
Carried me home

I've been racing the clock
And I've run out of steam
I am ready for my final symphony
Oh my body is weak
But my soul is still strong
I am ready to rest in your arms

I've been racing the clock
And I've run out of steam
I am ready for my final symphony
Oh my body is weak
But my soul is still strong
I am ready to rest in your arms
Oh, oh

Interestingly, the song is about the lead singer's grandfather, who fought in the war, and recently passed away (you can watch the proper video here, which better explains the story). For me, it reminds me that I have family and friends who love me, and who carried me through the darkest days of my life.  Thank you to each of you, you know who you are!

Friday, August 20, 2010

Pulling back the curtains - Olivia's story

I'm writing this post as I move into a new phase of my life. After a year filled with moments of sheer joy and complete despair, I've reached a place of acceptance and hope. I'm here to share my story in the hopes that it will help someone who has endured similar heartache and tried to move on with life through a lens of optimism.

But before I can share where I'm headed, I need to explain where I've been...

In October 2009 we became pregnant with a July 2010 due date. This was our first time pregnant and we were overwhelmed with the news. As the weeks passed and the baby grew, so did our acceptance of what was about to happen. It was completely surreal until the day we heard her heartbeat through the Doppler, and then we knew there was no turning back. Everything was progressing to plan and we travelled to Los Cabos, Mexico in February for a babymoon to celebrate our last months together as a childless couple.

Little did we know what awaited us upon our return.

It all started at our 21 week ultrasound at the end of February. We were very excited to see the baby that was growing stronger and kicking harder each day. I went in to the room by myself (they wouldn't let B in until the end) and everything seemed pretty routine...until the end. The nurse turned off the machine and told me I needed to go see my doctor the next day. I was surprised and asked about seeing the picture, and she said we needed to go to the doctor. I asked what what was wrong, and she wouldn't say.

Needless to say we were totally freaked out and barely slept that night. We went to the doctor the next morning and his face immediately told us something was very wrong. He said the baby had a two vessel umbilical cord instead of three. He said this wasn't uncommon but could be indicative of other things. He also said there were some anomalies in the face and head that they couldn't identify. He said we would be referred to the Mount Sinai high-risk pregnancy clinic in Toronto for further investigation.

We were devastated by the news, but tried to be optimistic, hoping that it was a misdiagnosis or something minor. Our Mount Sinai appointment was a full two weeks later so we both threw ourselves into work to try and forget about it, which was virtually impossible.

The day of our appointment came and we were both cautiously optimistic. The doctor conducted a thorough ultrasound, which took nearly an hour. She then left and came back with two more doctors to do a follow-up ultrasound on the baby's head. They then left to discuss and told us to go to a small room at the end of the hall to wait for the results.

We never imagined what they would tell us. They said the baby had
exencephaly, a rare condition where the skull doesn't form properly and the brain is exposed/outside the head. They said it was a fatal condition. I could try to carry the baby to term, but i would likely miscarry. And even if I did carry to turn, the baby couldn't survive outside my body. The final option was to be induced early.

Needless to say we went with the last option, rather than delaying the inevitable. They booked us in for an induction one week later. That was quite possibly the longest week of my life. I went with B to Chicago for a trade show to take my mind off the reality of what we were facing, and we returned the night before the induction.

I was in the hospital for 48 hours and had a series of medications to induce labour. It was extremely painful and I ended up having an epidural to help me manage the pain.  On Friday, March 19, I gave birth to a stillborn baby girl, who we named Olivia. She was 1 pound 5 oz and very tiny. Her head had a number of anomalies, including a severe
cleft, but the rest of her body was perfect. I was thankful for the opportunity to hold her tiny body.

Olivia was buried with my grandparents in my hometown, where we know she's not alone.

The next two months were the most difficult of our lives, and we couldn't have gotten through it without the love and support of our family, friends and co-workers. We struggled to find peace in knowing that our little angel is looking down at us from heaven.

Since then we found out that the baby's condition was caused by an
amniotic band, which is extremely rare and very much unlikely to reoccur.

So now, five months later, we are once again pregnant and due April 1, 2011. I'm cautiously optimistic about this pregnancy, and desperately hopeful this time will be our turn to become parents.